Navigating the internet for information regarding diseases and treatments can be daunting, with a lot of poor quality or misleading information being available.
Especially when you have a new diagnosis, full and frank discussion with your doctor is the best first step to informing yourself about your condition. We have numerous useful patient information sheets which have been put together using published evidence and best practice, which you may find helpful.
When you are ready to learn more, the internet can provide good quality information providing you keep to reputable websites that provide evidence-based information and advice. Some which we recommend are:
- American Society of Haematology
- Australian Red Cross Blood Service
- Cabrini Health Australia
- Cell Therapies
- Cancer Victoria
- Haematology Society of Australia and New Zealand
- Leukaemia Foundation
- Lymphoma Hub
- Myeloma Foundation of Australia
- Peter MacCallum Cancer Centre
- Snowdome Foundation
- Victorian Epigenetics Group
- Support Group for the Australian Waldenstrom’s Macroglobulinemia Community
- Lymphoma Australia
- Australian Cancer Survivorship Centre
- Cutaneous Lymphoma
The following information sheets are provided for the education and support of our patients. They are intended as a general guide only, and should be used in conjunction with discussion with the treating haematologist.
Some of the Haematological conditions we treat
- Aplastic anaemia
- Deep Vein Thrombosis (DVT)
- Myelomysplastic syndrome (MDS)
- Myeloproliferative neoplasms (MPN)
Patient investigations & procedures
- Before a Bone Marrow Biopsy
- Information about the Bone Marrow Biopsy
- CT Scan
- MRI Scan
- PET Scan
- PICC Line
- Biological therapies
- Blood transfusions
- Clinical trials
- Stem cell transplants
- Watch and wait
Read more about cancer treatments at eviQ online https://www.eviq.org.au/
Personalised Medicine for Haematological Cancers at Epworth Genomics Centre
Why Genomic Testing for Patients at Epworth?
Epworth is investing in the future by providing comprehensive gene mapping for individual patients.
The aim of the Epworth Genomic service is to provide specialist doctors comprehensive genomic analysis for their patients requiring genomic testing as a part of routine cancer care.
Professor Miles Prince in his role as Director of Molecular Oncology and Cancer Immunology at Epworth (MOCI) works closely with leading scientists at Peter Mac, the VCCC, the Walter and Eliza Hall Institute (WEHI). This ensures the best data analysis for patients and access to clinical trials with cutting edge treatments made available for specialists at Epworth. This genetic information helps in diagnosis, the treatment strategy into the future and matching the right drug for the cancer thus creating personalized and individualised medicine for each patient.
The aim of this world wide collaborative research and data collection is to create personalized pathways for a new era in cancer care.